Are you looking for an emergency disclosure card that doesn’t pathologize autistic people, presumes your competence, and respects your agency?
This is a link to the PDF of my emergency disclosure cards!
These pocket-size cards are designed for use by autistic people in lieu of autism information/awareness cards available online that usually carry messages such as “I’m sorry about my child’s behavior, h/she has autism,” or “this person has autism; please call this other person for help right away because h/she doesn’t understand.” (Binary language intentional.) Those messages are often pathologizing (i.e. making autism a medical problem) and belittling (such as by assuming the autistic person must have the card handed over on their behalf, and cannot communicate themself), but there are also a number of reasons why actually autistic people might want to have cards available that disclose their status as autistic.
Some possible uses (by no means all!) for these cards might include:
- Disclosing in emergency situations, such as to police, emergency medical services, firefighters, or evacuation staff
- Disclosing in uncomfortable situations, such as to airport security, routine encounters with police, special event staff, or medical professionals on regular visits
- Disclosing if you do not normally communicate with speech, or if you can communicate with speech sometimes but can’t at a particular moment
These cards can be adapted to a wide variety of uses, though they are of course limiting. For example, they assume English literacy as well as privilege sighted people and those who can read smaller font sizes (unless read online, where they are accessible by screen readers and refreshable Braille devices), though in many emergency disclosure situations, the people to whom you might want to give this card are likely to be sighted. On the other hand, they are accessible to any deaf person who is literate in English, and can help you communicate if you don’t know ASL or are unable to sign at a particular time.
The cards have space on the back for you to write the name and phone number of a trusted friend, relative, or support person, which is intended to be used if you either indicate that you want this person to be contacted, or if you are completely unable to communicate, or if you are found somewhere unconscious and therefore physically unable to communicate and someone went through your pockets/wallet.
Both sides say at the top, “I am autistic. If I have given you this card, it is hard for me to communicate right now, but you can help!” The front of the card has two columns with the following text:
Stay calm! I might…
- scream at loud noises or touch
- lash out if you touch me
- panic if yelled at
- rock, spin, pace, or flap my hands
- fidget with an object
- not be able to talk at all
- repeat things you say
- seem rude or tactless
- not reply to questions right away
- misunderstand what you say
- not make eye contact
To help us communicate…
- presume that I am competent
- give me extra personal space
- give me extra time to respond
- give me time to calm down
- turn down lights and noises
- let me write on a notepad
- only touch me if you HAVE to
- tell me if you have to touch me
- only touch me with a firm grip
- be specific and concrete
- avoid slang and sarcasm
I also have these cards available printed on business card stock, but if you want to make your own, you or a friend with better fine motor skills can print the next page, cut along the lines below, and glue or tape the sides together. You can also glue the two sides to opposite sides of a piece of cardstock for a thicker, sturdier card. If you want to purchase cards from me printed professionally on business card stock, email firstname.lastname@example.org for questions. The money helps me cover costs. Note that I am autistic, so sometimes orders can be a little delayed, as I have to process each order as it arrives. For orders shipping to the United States, I ask for 5 cards for $5, 20 cards for $10, and 100 cards for $35. For orders shipping outside of the United States, the base price is the same but I will add the cost of shipping on top of that.
[…] for this purpose! Aside from that, I’m thinking about making a written disclosure card like those produced by Autistic Hoya, but obviously in French; or, at the very least, sitting down one day and putting together relevant […]
[…] (Примечание: советую вам сделать подобные карточки. Вы можете выделить текст карточек, распечатать и наклеить на плотный картон или откорректировать текст в зависимости от ваших собственных особенностей) Автор текста и идеи: Лидия Браун. Источник: Аutistic hoya.net […]